My heart is right here. It’s outside of my chest and I really love my mom, she’s always touching my heart because she likes it.”
A brave girl Virsaviya Borun, who was born with her heart outside of her chest. She is just like any other girl of her age. But what sets her apart is her strength to live with such a condition.
She was born with Pentalogy of Cantrell, which is a rare disorder in which her heart and intestines reside outside her stomach. There are also some other body parts that are missing, such as the diaphragm, parts of the chest bones and some abdominal muscles.
The little girl lives with her mom, Dari Borun, in the USA, but they are originally from Russia.